نوع مقاله : گزارش موارد نادر

نویسندگان

1 کارشناسی ارشد روانشناسی بالینی گروه روانشناسی، دانشگاه آزاد اسلامی واحد نجف آباد، نجف آباد، ایران

2 استادیار، گروه روانشناسی، دانشگاه آزاد اسلامی واحد نجف آباد، نجف آباد، ایران

چکیده

مقدمه: پیچیدگی‌های نحوه مراقبت از بیماران مبتلا به اسکلروز جانبی آمیوتروفیک (ALS) مشکلات بسیاری را به مراقبان تحمیل می‌کند و همین امر اعمال مداخله برای افزایش حمایت اجتماعی ادراک‌شده و امید به زندگی را ضروری می‌سازد. پژوهش حاضر با هدف مطالعه موردی اثربخشی درمان پذیرش و تعهد بر حمایت اجتماعی ادراک‌شده و امید به زندگی مراقبان دو بیمار مبتلا به اسکلروز جانبی آمیوتروفیک (ALS) انجام شد.
روش‌ها: روش پژوهش نیمه‌آزمایشی با طرح تک آزمودنی بود و در آن از طرح A B استفاده شد. در این پژوهش 10 بار اندازه‌گیری (3 بار به‌عنوان خط پایه، 4 بار طی درمان و 3 بار نیز در مرحلۀ پیگیری) به عمل آمد. جامعه آماری پژوهش را مراقبان دو بیمار مبتلا به اسکلروز جانبی آمیوتروفیک (ALS) که در نیمه اول سال 1401 به انجمن حمایت از بیماران نوروپاتی شهر اصفهان مراجعه‌کرده بودند، تشکیل داد و این افراد به‌صورت در دسترس انتخاب شدند. ابزار پژوهش مقیاس حمایت اجتماعی ادراک‌شده (MSPSS) و مقیاس امید به زندگی (LES)، بود. جلسات درمان پذیرش و تعهد به مدت 8 جلسه 60 دقیقه‌ای به‌صورت هفتگی برای هر دو نفر در مطب روانشناس به‌صورت انفرادی اجرا شد. بررسی داده‌ها با استفاده از تحلیل دیداری انجام گرفت.
یافته‌ها: نتایج نشان داد درمان پذیرش و تعهد موجب افزایش حمایت اجتماعی ادراک‌شده (79/42 درصد) و امید به زندگی (77/43 درصد) مراقبان دو بیمار مبتلا به اسکلروز جانبی آمیوتروفیک (ALS) می‌شود.
نتیجه‌گیری: درمان پذیرش و تعهد می‌تواند به‌عنوان یک مداخله کاربردی به‌منظور بهبود حمایت اجتماعی ادراک‌شده و امید به زندگی مراقبان بیمار مبتلا به اسکلروز جانبی آمیوتروفیک (ALS) در نظر گرفته شود.

کلیدواژه‌ها

  1. Fathi M, Sedaghat M, Ohadi H. Investigating the effectiveness of interventions based on positive psychology on post-traumatic growth, self-compassion and quality of life in patients with amyotrophic lateral sclerosis (ALS). 2021; 9(32): 28-39. (in Persian)
  2. Su W, Cheng Y, Jiang Z, Duan Q. Yang T Et al. Predictors of survival in patients with amyotrophic lateral sclerosis: A large meta-analysis. EBioMedicine 2021; 74: 103732.  doi: 10.1016/j.ebiom.2021.103732.
  3. Masrori P, Damme V. Amyotrophic lateral sclerosis: a clinical review. European Journal of Neurology 2020; 27(10): 1918-1929.
  4. Aktekin M, Uysal H. Epidemiology of Amyotrophic Lateral Sclerosis. Turk J Neurol 2020; 26(3): 187-196.
  5. Logroscinoa G, Piccininni M. Amyotrophic Lateral Sclerosis Descriptive Epidemiology: The Origin of Geographic Difference. Neuroepidemiology, 2019; 52(1-2): 93–103.
  6. Beeldman E, Raaphorst J, Klein Twennaar M, Govaarts R, Pijnenburg Y. A. L, de Haan, R. J. et al. The cognitive profile of behavioural variant FTD and its similarities with ALS: a systematic review and meta-analysis. J. Neurol. Neurosurg. Psychiatry 2018; 89(9): 995–1002.
  7. D’Alvano G, Buonanno D, Passaniti C, De Stefano M, Lavorgna L, Tedeschi G. Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic. Brain Sci 2022; 12(1): 49-54.
  8. Bock M, Duong YN, Kim A, Allen I, Murphy J, Lomen-Hoerth C. Cognitive-behavioral changes in amyotrophic lateral sclerosis: Screening prevalence and impact on patients and caregivers. Amyotroph. Lateral Scler. Front. Degener 2016; 17(5-6): 366–373.
  9. Oh J, Kim JA, Chu MS. Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea. Int. J. Environ. Res. Public Health 2021; 18(9): 4937. doi: 10.3390/ijerph18094937
  10. Snyder C.R. Hope theory: Rainbows in the mind. Psychol Inq 2000; 13(4): 249-75.
  11. Cheavens JS, Heiy JE, Feldman DB, Benitez C, Rand KL. Hope, goals, and pathways: Further validating the hope scale with observer ratings:The Journal of Positive Psychology 2019; 14(4): 452–462.
  12. Safara M, Khanbabai M, Khanbabai M The effect of spiritual skills training on life expectancy of mothers with mentally retarded children. Shafai Khatam 2019; 8(2): 65-71. (in Persian).
  13. de Wit J, Beelen A, Drossaert C.H.C, Kolijn R, van den Berg L, Visser-Meily J. A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial. BMC Psychol 2018; 6(1): 20. doi: 10.1186/s40359-018-0232-5.
  14. McKinley CJ, Luo Y, Wright P. Re-assessing the nature and prevalence of mental health resources on college counseling center websites: An over-time and cross-country comparison. Paper to be presented at the annual conference of the International Communication Association, Seattle, WA; 2014.
  15. Khatiwada J, Muzembo BA, Wada K, Ikeda S. The effect of perceived social support on psychological distress and life satisfaction among Nepalese migrants in Japan. PLOS ONE 2021; 16(2): e0246271.
  16. Ebrahimi A, Afshar H, Anuri M, Neshat Dost H, Abedi A, Nasiri H. Effectiveness of acceptance and commitment group therapy (ACT) on pain acceptance, pain-related anxiety and pain intensity in male patients with chronic pain. Journal of Isfahan Medical School. 2013; 32(295): 1-10. (in Persian)
  17. Hayes SC, Levin ME, Plumb-Vilardaga J, Villatte J. L, Pistorello J. Acceptance and commitment therapy and contextual behavioral science: Examining the progress of a distinctive model of behavioral and cognitive therapy. Behavior therapy 2013; 44(2): 180-198.
  18. Hayes SC. Acceptance and Commitment Therapy, Relational Frame Theory, and the Third Wave of Behavioral and Cognitive Therapies – Republished Article. Behavior Therapy. 47(6): 869-885.
  19. Flaxman P. E, Bond F. W. A randomised worksite comparison of acceptance and commitment therapy and stress inoculation training. Behaviour research and therapy 2010; 48(8): 816-820.
  20. AbdulAzimi M, Niknam M. The effectiveness of treatment based on acceptance and commitment on the perception of social support and body dissatisfaction in the elderly. Journal of Psychology of Aging 2018, 5(1): 13-25.
  21. BasirAmir M, Qamari H, Kayani A. The effectiveness of treatment based on acceptance and commitment on the components of the perception of social support of addicted people. Journal of Law Enforcement Medicine 2018, 8(3): 99-104.
  22. Faizah I, Kartini Y, Yunita Sari R, Rohmawati R, Afiyah RK, Suryadi Rahman F. Social Support and Acceptance Commitment Therapy on Subjective Well-Being and Mental Health of COVID-19 Patient. Open Access Maced J Med Sci 2019; 9(19): 238-43.
  23. Bahrami Abdulmaleki S, Homayoni A, Aliani M. The effectiveness of treatment based on acceptance and commitment on resilience, psychological well-being and life expectancy in asthmatic patients. Tolo Health 2021, 20(1): 55-68. (in Persian)
  24. Zarezade R, Alivandi Wafa M, Tabatabai M, Aghdasi A. The effectiveness of treatment based on acceptance and commitment on depression and life expectancy of liver transplant patients. New Psychological Research 2021; 16(62): 109-122. (in Persian)
  25. Moghadam N, Amrai R, Asadi F, Amani O. The effect of acceptance and commitment-based therapy (ACT) on life expectancy and psychological well-being of women with breast cancer undergoing chemotherapy. Psychiatric Nursing 2017; 6(5): 1-8. (in Persian)
  26. Momeni F. The effect of treatment based on acceptance and commitment on resilience and life expectancy in patients with leukemia. Iran Psychological Association Congress 2016. (in Persian)
  27. Zhao C, Lai L, Zhang L, Cai Z, Ren Z, Shi C, et al. The effects of acceptance and commitment therapy on the psychological and physical outcomes among cancer patients: A meta-analysis with trial sequential analysis. Journal of Psychosomatic Research 2021; 140(4): 11-30.
  28. Li H, Wu J, Ni Q, Zhang J, Wang Y, He J. A systematic review and meta-analysis of the effectiveness of treatment based on acceptance and commitment in patients with breast cancer. Nurs Res 2021; 70(4): E152-E160.
  29. Bas S, Dirik G. Acceptance and Commitment Therapy Interventions in Patients Diagnosed with Cancer: A Systematic Review. Studies in Psychology 2019; 39(2): 459-485.
  30. Moqebel Esfahani S & Haqat A. Investigating the effectiveness of treatment based on acceptance and commitment on resilience, meaning in life and family functioning of family caregivers of patients with schizophrenia. Knowledge Horizon 2018, 25(4): 298-311. (in Persian)
  31. Fazli Ghafouri M, Moghadam M & Khatami Mohammad H. the effectiveness of treatment based on acceptance and commitment of depression on depression and the acceptance and practice of caregivers of cancer patients. Journal of the Faculty of Medicine 2017; 61(1): 368-376. (in Persian)
  32. Goodwin KA. Research in psychology: Methods and design. John Wiley & Sons; 2009.
  33. Salami AR, Joukar B, Nikpour R. Internet and communication: perceived social support and loneliness as antecedent variable. Psychological studies 2009; 5(3): 81-102. (in Persian)
  34. Snyder CR, Irving L, Anderson JR. Hope and health: Measuring the will and the ways. In Handbook of social and clinical psychology: The health perspective, edited by C. R. Snyder and Donelson R. Forsyth. Elmsford, NY: Pergamon Press, 1991.
  35. Snyder C. R, Lopez S. G. Positive Psychology. New York: Oxford University Press; 2017.
  36. Shajaei-Baghini, F. Rozaneh. The relationship between the level of hope and optimism with the avoidance of risky behaviors in 15-18-year-old girls in Kerman. Master's Thesis in Psychology, Alaama Tabatabai University, 2017. (in Persian)
  37. Hayes S. Luoma J, Bond F, Masuda A, Lillis J. Acceptance and Commitment Therapy: Model, processes and outcomes. Behaviour Research and Therapy 2006; 44(1): 1-25.
  38. Harris R. Treatment of acceptance and commitment in plain language. Translated by Anoushe Aminzadeh. Tehran: Honorable 2021.
  39. Cooper JO, Heron TE, Heward WL. Applied behavior analysis (2nd ed.). Upper Saddle River, NJ: Pearson Education, Inc 2007.
  40. Abolghasemi A, Taghipour M, Narimani M. Relationship between personality type D, self-compassion and social support in coronary heart patients. Journal of Health Psychology 2013; 3(1): 1-13. (in Persian(
  41. Makkiabadi Z. The relationship between self-efficacy and perceived social support with students' psychological health. Master's thesis in clinical psychology. Tarbiat Moalem University, Tehran 2018. (in Persian(
  42. Arch JJ, Wolitzky-Taylor KB, Eifert GH, Craske MG. Longitudinal treatment mediation of traditional cognitive behavioral therapy and acceptance and commitment therapy for anxiety disorders. Behaviour Research and Therapy 2012; 50(7): 469-478.
  43. Luoma J.B, Kohlenber B.S, Hayes S.C, Fletcher L. Slow and steady wins the race: A randomized clinical trial of acceptance and commitment therapy targeting shame in substance use disorders. Journal of Consulting and Clinical Psychology 2012; 80(1): 43-53.
  44. Safard Nia M, Ramezani Shirin M, Selagi Z. Comparison of the effectiveness of treatment based on acceptance and commitment with meaning therapy on psychological distress and life expectancy of patients with breast cancer with a three-month follow-up 2021: 5(4): 496-489. (in Persian(
  45. McCracken LM, Gutiérrez-Martínez O. (Processes of change in psychological flexibility in an interdisciplinary group-based treatment for chronic pain based on Acceptance and Commitment Therapy. Behaviour research and therapy 2011; 49(4): 267-274.